You or a loved one have been
diagnosed with Fabry disease.
Do you recognize
your symptoms?
You or a loved one have been
diagnosed with Fabry disease.
Do you recognize
your symptoms?
It's a continuum that ranges from excellent wellbeing to having symptoms that can vary. With Fabry disease, mental health symptoms can change from day to day, and they can be different for each person. What matters is that people learn to recognize their own symptoms and be mindful of managing them at the earliest stage.
Stressors associated with Fabry disease include:
When to seek support?
Self-care and support from friends and family are helpful, but it's important to know when to seek professional care. If you or someone you care for are experiencing any of the symptoms below, talk to your doctor and ask about a referral for therapy:
In young children, the signs of a mental health condition might look different and can include changes in school performance and sleeping and eating patterns, excessive worry or anxiety, hyperactive behavior, frequent nightmares, frequent disobedience or aggression, and frequent anger or emotional outbursts.
Be your own advocate.
Feeling seen, heard, and understood is an important first step in any treatment plan. Treatment options can include medication, therapy, social support and education.
Put yourself first.
Proper treatment and support can help you feel empowered in managing Fabry disease.
Put yourself first.
Proper treatment and support can help you feel empowered in managing Fabry disease.
You may not be able to change your physical diagnosis, but you can feel empowered to improve your quality of life.
List specific approaches that work for you, and don’t be afraid to try new ones.
Use the symptom information above to have an honest, open conversation with your doctor.
Join a NAMI Hearts+Minds course at your local NAMI. Learn more here.
