Mindfully Rare is specifically designed to support the mental health of people living with rare diseases and their caregivers.
Call the NAMI Helpline at 800-950-6264 or text “NAMI” to 62640
All individuals shown are not actual patients.
Having a rare disease can be lonely, stressful, and overwhelming. The good news is, while having a rare disease is unique, you are not alone, and with the right support, the future is bright.
Mental and physical health are intertwined
Mental and physical health are intertwined
Understanding the connection between mental and physical health is essential to overall wellness. People affected by mental illness have higher rates of other serious health conditions.
The best possible mental health requires attention to all aspects of your health. Take the time you deserve for self-care. Small steps that improve your mental health will move the dial toward maintaining and improving your daily emotional wellbeing. While these changes may not be big, they add up. Gaining a better understanding of depression and anxiety can help you improve your mental and physical wellbeing.
You are not alone in asking for help
16.5 million people have used the 988 Suicide & Crisis hotline since its launch in July 2022:
11.1million calls
2.9million texts
2.4million chats
If you or someone you know is struggling or in crisis, help is available. Call or text 988 or chat 988lifeline.org to reach the 988 Suicide & Crisis Lifeline.
Chiesi Global Rare Diseases is committed to helping address mental wellness within the rare disease community by connecting you to NAMI.
We strive to revolutionize the lives of people living with rare diseases. We work in close partnership with caregivers, patient communities, healthcare professionals, government authorities, and other stakeholders to build a brighter future for all. We relentlessly pursue sustainable development goals with passion, courage, teamwork, and innovation. We believe, from timely and accurate diagnoses to receiving effective treatments and finding supportive communities, no one should feel left behind.
